Why did I create this site? Because if you are on this site, you or a loved one has had a diagnosis of gastroschisis. This site is written for all the parent's out there that have received this diagnosis and don't know what to do next. We lived through it and now have a happy, healthy five-month-old baby boy. If it weren't for the lack of a real belly button, you'd never know that anything was different about him.
I hope that this site answers some of your questions and helps to explain the process that you will be going through. If you have questions that I don't answer here, contact me and I will try to answer as best as I can.
This site is dedicated to our son, Tyler. When I was 18 weeks pregnant we found out that he had gastroschisis. We had gone for a free ultrasound at a local school that has an ultrasound tech program. The teacher took us aside after the ultrasound and told us that she saw something on the scan that we needed to see the doctor about. She wouldn't say what it was that she saw, so I spent a hysterical night imagining all the horrible things that could possibly be wrong with my baby. The next day we had a level 2 ultrasound at the hospital and were told officially that our little boy had gastroschisis. The doctor was very kind and attempted to explain the problem as best as he could. We simply were not prepared to understand what he was telling us in that moment.
I'd be lying if I tried to tell you that wasn't a life changing moment for my husband and I. All of a sudden we went from joyful expectant parents to terrified, babbling idiots. Why did this happen? Was it something I did, didn't do, something I ate, punishment for something I did ten years ago? Was it because my husband was still a smoker when we conceived?
The doctor had no real answer for these questions. It's just one of those things that happens, he said. There isn't any genetic reason, and you didn't do or not do anything that caused this. Well, that's all fine for him to say, but as a mother-to-be I had a hard time believing it. My husband is one of those silver lining people, so he didn't seem nearly as concerned with why as I was. All he wanted to know was, what are the chances that it would happen if we had another baby? Unheard of, is what the doctor told us. You don't need to worry about that happening, he told us. Of course not, I'm thinking, cause I'm never doing this again! LOL, I do still feel that way, but not for the reasons I had at that moment in time.
Most of the info on this page is here because of my personal experience. I am trying to provide the information that wasn't out there when we went through this.
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